1Ask A Question

When we first learned our dad was sick we had tons of questions. We felt lucky because Mom and the doctors helped us understand things better. We’re here to show you around this website to help you learn. If you have other questions that still need to be answered, we’d like to know about them!

Do you have a question about FTD?

If you have questions about FTD and do not see answers on the website, please tell us. AFTD is The Association for Frontotemporal  Degeneration. It is an organization that advocates for people with FTD and their families and raises money for FTD research. For very personal questions, talk to an adult you know and trust.

Use the form below to Ask AFTD

Please tell us your name, age and email address along with your question. It is helpful if you give your correct age and email address but if you don’t want to, you do not need to give your real name. Only the first name and age you provide will be shown on this page. All other information will stay private.

We will answer your questions as quickly as possible. We will send the answer to the email address you provide and post it below the form in this section.

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Previously Asked Questions

Q. What are some symptoms of FTD? (Alexander, age 10)
.  Because the brain is involved in all our thoughts, actions and feelings there are many different things that can happen because of FTD. Each person with FTD can have symptoms that are quite different from another person. There are two pages on the website that describe some of the symptoms. This cool Brain Map is a good place to start; FTD affects the frontal and temporal lobes. This page on Types of FTD describes what may happen and how FTD can affect behavior, language or movement.

Q. Is FTD linked to any other diseases? (Alexander, age 10)
A. Different things happen in the biology of brain cells that lead to FTD. Researchers have found a link between the problem in the cells (the pathology) in some cases of FTD and ALS. ALS is amyotrophic lateral sclerosis – or Lou Gehrig’s disease. Researchers estimate that approximately 15% people with behavioral FTD have FTD and ALS.